About Us


The development of the HRQoL-IDD-16 was completed by a multidisciplinary team based at the University of Utah.

Lauren Clark – Lauren Clark is Professor and Shapiro Family Endowed Chair in Developmental Disability Studies at the School of Nursing, University of California Los Angeles. She is a community health nurse with a background in medical anthropology. Her research focuses on health and quality of life for people with developmental disabilities.

Marjorie Pett – Marjorie Pett is a Professor Emerita in the University of Utah College of Nursing. Prior to her retirement, she taught research methods and statistics to graduate students in the health sciences for more than 30 years. She is the author of several textbooks examining statistics for small samples and the use of factor analysis in the development of health-related assessment measures. Her research interests include scale development, quality of life issues for persons with IDD and adjustment to divorce.

Beth Cardell – Beth Cardell is an Occupational Therapist with a PhD in Health Promotion and Education. She is an Associate Professor, Lecturer in the Department of Occupational and Recreational Therapies at the University of Utah.

Jia-Wen Guo – Jia-Wen Guo is an Assistant Professor in the College of Nursing at the University of Utah. Her research focuses on using information technology to improve symptom management and developing new instruments to better assess symptoms in minorities.

Erin Johnson – Erin Johnson has a PhD in Cognitive Psychology with a focus on Developmental Cognitive Neuroscience. She currently works as a Research Associate in the School of Medicine Department of Obstetrics and Gynecology at the University of Utah.

Special thanks to The Resource Exchange in Colorado Springs, specifically David Ervin, Nichole Guerra, and Betty Geer.

The development of HRQoL-IDD-16 was funded by:

  • University of Utah College of Nursing Research Committee-Psychometric and Field Testing of the HRQoL-IDD-16
  • University of Utah Community Based Research Award- Assessing Health-Related Quality of Life for Persons with Intellectual Disability

For questions and information, please email [email protected].