Using principles of community-based participatory research we developed a measure of health-related quality of life (HRQoL) for individuals with intellectual and developmental disability (IDD). The HRQoL-IDD-16 is a measure of health-related quality of life for individuals with IDD. The response format depicts a gradient of fluid-filled cups (‘‘none’’ to ‘‘full’’) to represent frequency of experience of each item on a 5-point scale. The HRQoL-IDD-16 was developed as a self-reported subjective health-related quality-of-life measure for adults with intellectual disability. The measure is appropriate for research and/or community-based administration with minimal supervision and limited respondent and agency burden.
Example questions on the Measure:
Example answers on the Measure:
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